Julian’s Awareness Movement (JAM) is inspired by our son Julian, who was diagnosed with Dravet at one year old. Not a single day passes by where Dravet isn’t at the forefront of everything we do. We want to change that.
We know the fear, loneliness, sleeplessness and other profound life alterations the diagnosis brings. We are also aware of the love, the strength, the courage, and the empathy this experience has awakened in us.
Let’s be with each other in all of this,
Dan & Deb Chang
We’re accelerating cutting-edge pathways to a cure, raising awareness, and fostering a robust community of support for families affected by Dravet Syndrome.
LET’S JAM to find a cure. That cannot wait. A cure is freedom.
LET’S JAM to promote the most promising innovations.
LET’S JAM to make each day a little easier by sharing our experience and resources.
LET’S JAM in celebration of the moments of joy and connection—every note of music, every tiny victory, every feeling of hope.
We don’t know what the future holds, but we can be present for one another today. LET’S JAM.
JAM is committed to leaving no stone unturned when it comes to finding a cure and making life easier for families.
Whether your child is newly diagnosed or you’ve been in it for years, this is the place to find and give the support we all need.