Coming Together
for Support

There’s a kind of connection that only Dravet families share. When we come together there is joy, there is hope, there is generosity, and there is love.

Watch this space and join our community for more details on these and other upcoming events:

JAM for Dravet Launch Party

Join us in San Francisco in early 2020 to celebrate the start of the foundation and raise funds for a cure.

Get TicketsSponsor

Quarterly Family Meetups

Our first meetup in spring 2020 will be a community picnic where we can connect with other families, share our experiences and eat yummy food. Future meetups will host speakers and other free educational offerings.

RSVPSign-Up to Be Emailed Invites

5K for Dravet Syndrome Foundation

This annual event, started by Dan and Deb back in 2017, happens every September. It’s a fun way to come together to raise funds and awareness.

Sign-Up to be Emailed About 2020Check out 2019

Dravet Syndrome Foundation Events

DSF hosts a bi-annual national conference, local “Day for Dravet” events and more.

2020 ConferenceDay of Dravet
Photo from the Dravet Syndrome Foundation Facebook Page.