Finding Support
We all Need

DISCLAIMER: These resources are for informational purposes only and are not provided or intended to diagnose, treat, prevent or cure any disease, nor does JAM for Dravet make any claim as to the accuracy or appropriateness of any particular course of action described.

JAM for Dravet is happy to suggest some of the support systems that have been helpful to the Chang family as they’ve navigated Dravet. We honor that each family has its own experience and not every support is suitable for every Dravet child. Please know we offer our ideas from the limited vantage point of one family’s perspective. If you have suggestions about what works for your family, we would love to hear them. Not all suggestions will be posted on the website. We encourage our Dravet community to engage with one another to share ideas and hope to help facilitate that as much as we can.

Local Bay Area Resources:

Medical

Dravet Syndrome Foundation

National Epilepsy Foundation

UCSF Benioff Children’s Hospital

Pediatric Epilepsy Center of Excellence

Stanford Pediatric Epilepsy Center

Golden Gate Regional Center

State-funded assistance for individuals with special needs

School

Community Advisory Committee for Special Education

Parents group for Special Education in SFUSD

San Francisco Unified School District

Special Education Services – Home page of SFUSD Special Education Services

Private Therapies

Connected Kidz

Occupational Therapy, Speech and language therapy

Seesaw

Social-Emotional well-being

Halleck Creek Ranch

Equine Therapy for kids with special needs

Have you found a resource that isn’t listed here? Get in touch and let us know about it.