DISCLAIMER: These resources are for informational purposes only and are not provided or intended to diagnose, treat, prevent or cure any disease, nor does JAM for Dravet make any claim as to the accuracy or appropriateness of any particular course of action described.
JAM for Dravet is happy to suggest some of the support systems that have been helpful to the Chang family as they’ve navigated Dravet. We honor that each family has its own experience and not every support is suitable for every Dravet child. Please know we offer our ideas from the limited vantage point of one family’s perspective. If you have suggestions about what works for your family, we would love to hear them. Not all suggestions will be posted on the website. We encourage our Dravet community to engage with one another to share ideas and hope to help facilitate that as much as we can.
Local Bay Area Resources:
Dravet Syndrome Foundation
National Epilepsy Foundation
UCSF Benioff Children’s Hospital
Pediatric Epilepsy Center of Excellence
Stanford Pediatric Epilepsy Center
Golden Gate Regional Center
State-funded assistance for individuals with special needs