Finding Support
DISCLAIMER: These resources are for informational purposes only and are not provided or intended to diagnose, treat, prevent or cure any disease, nor does JAM for Dravet make any claim as to the accuracy or appropriateness of any particular course of action described.
JAM for Dravet is happy to suggest some of the support systems that have been helpful to the Chang family as they’ve navigated Dravet. We honor that each family has its own experience and not every support is suitable for every Dravet child. Please know we offer our ideas from the limited vantage point of one family’s perspective. If you have suggestions about what works for your family, we would love to hear them.
Local Bay Area Resources:
Medical
Dravet Syndrome Foundation
National Epilepsy Foundation
UCSF Benioff Children’s Hospital
Pediatric Epilepsy Center of Excellence
Stanford Pediatric Epilepsy Center
Golden Gate Regional Center
State-funded assistance for individuals with special needs
School
Community Advisory Committee for Special Education
Parents group for Special Education in SFUSD
San Francisco Unified School District
Special Education Services – Home page of SFUSD Special Education Services
Private Therapies
Connected Kidz
Occupational Therapy, Speech and language therapy
Seesaw
Social-Emotional well-being
Halleck Creek Ranch
Equine Therapy for kids with special needs
Have you found a resource that isn’t listed here? Get in touch and let us know about it.
